HSA - Cross-sectional Handicap-Health study - Informal caregivers 
Responsable(s) :
Soullier Noémie
Date de modification : 01/01/2018 | Version : 1 | ID : 73098
| Général | |
| Identification | |
| Nom détaillé | Cross-sectional Handicap-Health study - Informal caregivers |
| Sigle ou acronyme | HSA |
| Numéro d'enregistrement (ID-RCB ou EUDRACT, CNIL, CPP, etc.) | CNIL |
| Thématiques générales | |
| Domaine médical |
Disability/handicap |
| Déterminants de santé |
Healthcare system and access to health care services Lifestyle and behavior Social and psychosocial factors |
| Mots-clés | Informal caregivers, family and friends, aid, living conditions, dependence, health, handicap, quality of life |
| Responsable(s) scientifique(s) | |
| Nom du responsable | Soullier |
| Prénom | Noémie |
| noemie.soullier@sante.gouv.fr | |
| Organisme | DREES |
| Collaborations | |
| Participation à des projets, des réseaux, des consortiums |
Yes |
| Précisions | CNAF CNAV CNSA |
| Financements | |
| Financements |
Public |
| Précisions | DREES |
| Gouvernance de la base de données | |
| Organisation(s) responsable(s) ou promoteur | DREES |
| Statut de l’organisation |
Secteur Public |
| Organisation(s) responsable(s) ou promoteur | Insee |
| Statut de l’organisation |
Secteur Public |
| Contact(s) supplémentaire(s) | |
| Caractéristiques | |
| Type de base de données | |
| Type de base de données |
Study databases |
| Base de données issues d'enquêtes, précisions |
Not-repeated cross-sectional studies (except case control studies) |
| Origine du recrutement des participants |
An administrative base or a register |
| Base ou registre, précisions | HSI-HSM survey file |
| Le recrutement dans la base de données s'effectue dans le cadre d'une étude interventionnelle |
No |
| Objectif de la base de données | |
| Objectif principal |
The principal objective of the "Informal caregivers" survey is to characterise non-professional caregivers (family, friends, neighbours, etc.) for individuals who have stated that they have trouble performing certain daily activities due to a handicap, a health problem or their age in the 2008 Handicap-Health survey.
Conducted from April to September 2008, the survey includes 5,000 informal caregivers of handicapped individuals and dependent elderly individuals. This survey allows for the description and analysis of the living conditions and quality of life of individuals providing support to individuals they are close with (family, neighbours, friends, etc.) who stated that they have trouble in activities of daily life in the Handicap-Health survey in ordinary households in 2008 (handicapped or elderly individuals). It addresses an interest identified in the recent public debate (conference on Family in 2006, decree dated January 2007 allowing the arrangement of the right to respite for family caregivers ), and addresses the initial questions from the Handicap-Health survey. It allows for knowledge of the motivations and manifestations of informal support, description and analysis of living conditions and quality of life of caregivers and the manner in which non-professional aid connects or does not connect with aid provided by professionals. The survey also allows for the detailed measurement of the consequences of aid on the daily life of the caregivers, on the professional, family and friendship plans. The general objective of the survey can be broken down into five sub-objectives: to create a portrait of caregivers from the social network, to gain knowledge of the configuration of aid and the conditions under which it is provided, to see how the caregiver's activity is reconciled with that of other caregivers, to understand the consequences of aid and the resulting needs, and lastly to gain knowledge of the representations that the caregivers have regarding their economic consent to the aid provided. |
| Critères d'inclusion |
The survey sample is made up of all of the caregivers named in the 2008 Handicap-Health survey, 16 years of age and older.
The "Informal caregivers" survey is a supplemental section of the Handicap-Health survey in ordinary households conducted by Insee in 2008: when a person indicates in the Handicap-Health survey that he or she is aided by one or more non-professional caregivers, a quick description of the caregiver and the nature of the aid that he or she provides is requested from the surveyed individual. The contact information for the caregiver (or caregivers) is also collected (with a maximum of 3 cohabitating caregivers and 10 caregivers per surveyed individual): they constitute the sampling frame for the "Informal caregivers" survey. The "Informal caregivers" study is limited to individuals 16 years of age or older. The individuals are questioned directly face to face by an Insee surveyor. |
| Type de population | |
| Age |
Adolescence (13 to 18 years) Adulthood (19 to 24 years) Adulthood (25 to 44 years) Adulthood (45 to 64 years) Elderly (65 to 79 years) Great age (80 years and more) |
| Population concernée |
General population |
| Pathologie | |
| Sexe |
Male Woman |
| Champ géographique |
National |
| Détail du champ géographique | France |
| Collecte | |
| Dates | |
| Année du premier recueil | 2008 |
| Année du dernier recueil | 2008 |
| Taille de la base de données | |
| Taille de la base de données (en nombre d'individus) |
[1000-10 000[ individuals |
| Détail du nombre d'individus | 5 000 |
| Données | |
| Activité de la base |
Data collection completed |
| Type de données recueillies |
Declarative data |
| Données déclaratives, précisions |
Face to face interview |
| Détail des données déclaratives recueillies | The questionnaire for the "Informal caregivers" survey addresses the following topics: Lifestyle of the caregiver Nature of the relationship with the person receiving care Description of the aid Relationship with the professional caregivers for health and for the sector Consequences of the aid on social relationships Consequences of the aid on the career path Consequences of the aid on activities Needs of the caregiver Aid provided to other people with health problems or handicaps Estimation of the subjective and monetary value of the aid provided |
| Existence d’une biothèque |
No |
| Paramètres de santé étudiés |
Health event/morbidity Health care consumption and services Quality of life/health perception |
| Modalités | |
| Suivi des participants |
No |
| Pathologie suivies | |
| Appariement avec des sources administratives |
No |
| Valorisation et accès | |
| Valorisation et accès | |
| Lien vers le document | http://www.drees.sante.gouv.fr/les-enquetes-handicap-sante,4267.html#sommaire_article |
| Accès | |
| Charte d'accès aux données (convention de mise à disposition, format de données et délais de mise à disposition) | To be defined |
| Accès aux données agrégées |
Access on specific project only |
| Accès aux données individuelles |
Access on specific project only |
