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        <titl xml:lang="FR">Banque nationale de données Alzheimer</titl>
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        <altTitl xml:lang="FR">BNA</altTitl>
        <altTitl xml:lang="EN">BNA</altTitl>
        <parTitl xml:lang="EN">National Data Bank for Alzheimer's Disease</parTitl>
        <IDNo>PEF9045</IDNo>
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        <prodDate date="2026-04-06">06/04/2026</prodDate>
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        <depositr>KARIM TIFRATENE</depositr>
        <depDate xml:lang="FR">02/06/2014</depDate>
        <depDate xml:lang="EN">11/05/2015</depDate>
        <distDate>29/07/2014</distDate>
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        <parTitl xml:lang="EN">National Data Bank for Alzheimer's Disease</parTitl>
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        <AuthEnty affiliation="CHU de">Karim  Tifratene</AuthEnty>
        <AuthEnty affiliation="CHU de">Philippe Robert</AuthEnty>
        <AuthEnty affiliation="CHU de">Christian Pradier</AuthEnty>
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        <producer role="Secteur Public">CHU Nice</producer>
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        <prodPlac>Département de santé publique - CHU de - Département de santé publique, Hopital de l'Archet1, 151, route Saint-Antoine de Ginestière 06200 NIce cedex 3</prodPlac>
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        <contact affiliation="CHU de" email="robert.p@chu-nice.fr">Philippe Robert</contact>
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      <authorizingAgency>CNIL</authorizingAgency>
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      <authorizationStatement xml:lang="EN">CNIL</authorizationStatement>
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    <stdyInfo>
      <studyBudget/>
      <subject>
        <keyword xml:lang="FR">Troubles de la mémoire</keyword>
        <keyword xml:lang="FR">Démences</keyword>
        <keyword xml:lang="FR">Alzheimer</keyword>
        <keyword xml:lang="FR">maladies apparentées à la maladie d'Alzheimer</keyword>
        <keyword xml:lang="FR">centre mémoire</keyword>
        <keyword xml:lang="EN">memory problems</keyword>
        <keyword xml:lang="EN">Alzheimer's</keyword>
        <keyword xml:lang="EN">diseases related to Alzheimer's disease</keyword>
        <keyword xml:lang="EN">memory centre</keyword>
        <keyword xml:lang="EN">dementia</keyword>
        <topcClas xml:lang="FR">Gériatrie</topcClas>
        <topcClas xml:lang="FR">Neurologie</topcClas>
        <topcClas xml:lang="FR">Psychologie et psychiatrie</topcClas>
        <topcClas xml:lang="EN">Geriatrics</topcClas>
        <topcClas xml:lang="EN">Neurology</topcClas>
        <topcClas xml:lang="EN">Psychology and psychiatry</topcClas>
        <topcClas xml:lang="FR">Génétique</topcClas>
        <topcClas xml:lang="EN">Genetic</topcClas>
      </subject>
      <abstract xml:lang="FR">Objectif de la base de données : Recenser les données d'activité des centres mémoire français et des médecins libéraux volontaires</abstract>
      <abstract xml:lang="EN">Database objective : To identify activity data from French memory centres and voluntary independent physicians.</abstract>
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        <timePrd/>
        <collDate event="start">10/2009</collDate>
        <collDate event="end"/>
        <collDate xml:lang="FR">Collecte des données active</collDate>
        <collDate xml:lang="EN">Current data collection</collDate>
        <nation>France</nation>
        <geogCover xml:lang="FR">France</geogCover>
        <geogCover xml:lang="EN">France</geogCover>
        <geogUnit>National</geogUnit>
        <anlyUnit xml:lang="fr">individuel
                </anlyUnit>
        <anlyUnit xml:lang="en">individuals
                </anlyUnit>
        <universe xml:lang="FR" clusion="I">Patients des centres mémoire français et des médecins libéraux volontaires</universe>
        <universe xml:lang="EN" clusion="I">Patients from French memory centres and voluntary independent physicians.</universe>
        <universe xml:lang="FR">Nombre d'individus : 496 000 individus en mai 2014</universe>
        <universe xml:lang="EN">Number of individuals: 496,000 individuals in May 2014</universe>
        <universe xml:lang="FR" level="Tranche d'âge">Adulte (45 à 64 ans)</universe>
        <universe xml:lang="FR" level="Tranche d'âge">Personnes âgées (65 à 79 ans)</universe>
        <universe xml:lang="FR" level="Tranche d'âge">Grand âge (80 ans et plus)</universe>
        <universe xml:lang="EN" level="Age range">Adulthood (45 to 64 years)</universe>
        <universe xml:lang="EN" level="Age range">Elderly (65 to 79 years)</universe>
        <universe xml:lang="EN" level="Age range">Great age (80 years and more)</universe>
        <universe xml:lang="FR" level="Type de population">Sujets malades</universe>
        <universe xml:lang="EN" level="Population type">Sick population</universe>
        <universe xml:lang="FR" level="Sexe">Masculin</universe>
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        <universe xml:lang="EN" level="Sex">Female</universe>
        <dataKind xml:lang="FR">Registres de morbidité</dataKind>
        <dataKind xml:lang="EN">Morbidity registers</dataKind>
        <dataKind xml:lang="FR"/>
        <dataKind xml:lang="EN"/>
        <dataKind xml:lang="FR">Données cliniques : --</dataKind>
        <dataKind xml:lang="FR">Données déclaratives : Face à face</dataKind>
        <dataKind xml:lang="EN">Clinical data: --</dataKind>
        <dataKind xml:lang="EN">Declarative data: Face to face interview</dataKind>
        <dataKind xml:lang="FR">Evénements de santé/morbidité</dataKind>
        <dataKind xml:lang="FR">Consommation de soins/services de santé</dataKind>
        <dataKind xml:lang="EN">Health event/morbidity</dataKind>
        <dataKind xml:lang="EN">Health care consumption and services</dataKind>
        <dataKind xml:lang="FR">Consultations (médicales/paramédicales)</dataKind>
        <dataKind xml:lang="FR">Produits de santé</dataKind>
        <dataKind xml:lang="EN">Medical/paramedical consultation</dataKind>
        <dataKind xml:lang="EN">Medicines consumption</dataKind>
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        <otherQualityStatement xml:lang="EN"/>
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        <timeMeth method="http://www.ddialliance.org/Specification/DDI-CV/TimeMethod_1.2_Genericode1.0_DDI-CVProfile1.0.xml">Longitudinal: Trend/Repeated cross-section</timeMeth>
        <dataCollector affiliation="CHU de">Karim  Tifratene</dataCollector>
        <dataCollector affiliation="CHU de">Philippe Robert</dataCollector>
        <dataCollector affiliation="CHU de">Christian Pradier</dataCollector>
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        <sampProc xml:lang="FR">Patients des centres mémoire français et des médecins libéraux volontaires</sampProc>
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        <collMode xml:lang="EN">Direct physical measuresMedical registration: --</collMode>
        <collMode xml:lang="FR">Face à face : --</collMode>
        <collMode xml:lang="EN">Face to face interview: --</collMode>
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          <srcDocu/>
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        <avlStatus xml:lang="EN">Participating centres.</avlStatus>
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        <complete/>
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        <notes/>
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        <deposReq/>
        <conditions xml:lang="FR">Centres participants</conditions>
        <conditions xml:lang="EN">Participating centres.</conditions>
        <disclaimer/>
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    <othrStdyMat>
      <relMat xml:lang="FR">http://www.banque-nationale-alzheimer.fr/csp/bna/Kanope.Modules.Bna.Pages.home.cls</relMat>
      <relMat xml:lang="FR"/>
      <relStdy/>
      <relPubl xml:lang="FR">http://www.plan-alzheimer.gouv.fr/mesure-no34.html</relPubl>
      <relPubl xml:lang="FR">http://www.epsp06.fr/documents/FicheAlzheimer06_vdef.pdf</relPubl>
      <relPubl xml:lang="FR">http://tinyurl.com/PUBMED-BNA</relPubl>
      <relPubl xml:lang="EN">http://www.plan-alzheimer.gouv.fr/mesure-no34.html</relPubl>
      <relPubl xml:lang="EN">http://www.epsp06.fr/documents/FicheAlzheimer06_vdef.pdf</relPubl>
      <relPubl xml:lang="EN">http://tinyurl.com/PUBMED-BNA</relPubl>
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